Seven Years Later

Obligatory milestone selfie, 2020 edition

I’VE COMPLETED ANOTHER TRIP AROUND THE SUN since my diagnosis in 2013 of large B-cell non-Hodgkin lymphoma. And what a trip it has been. 

Along with everyone in NYC, I scrambled in early March as the Corona Virus started to spread exponentially. I kept remembering the saying, “This, too, shall pass.” Early in my treatment, I walked by a local restaurant and saw it written on the sidewalk chalkboard. It was an affirmation of hope and boosted my resilience.

I used the phrase and shared that I was a cancer survivor during my first Zoom session of the course I teach at Pace University to reassure my students. The class transitioned to remote learning in days, and many of my understandably anxious pupils had to pack up and leave campus. It must have felt like they were living in a sci-fi thriller. One had to find a flight home to Europe where the virus had already hit, and Italy was in lockdown. Another, from India, had no choice but to stay in the city. Others went to their homes within New York City and the metropolitan area where transmission rates were alarming.

I often reflected on counting off each of the 18 weeks of chemo and beyond. July became August, summer became autumn, and the holiday season approached. After chemo, the time between follow up scans and visits increased, and at my annual checkup last December, Dr. Raphael, my oncologist, told me that I didn’t need to come back anymore. 

I wondered, too, what it must be like for all the cancer patients during the pandemic. I had to go to NYU Langone daily for five straight days of infusions, and, again, the day after finishing for an injection of Neulasta, a drug to boost my blood cell production because the chemo wiped out my immune system. That was challenging enough in normal times, much less during the chaos of a highly contagious virus, with patients lining the hospital’s hallways, where many would take their last breaths. 

When I learned that the Leukemia and Lymphoma Society developed a fund to help blood cancer patients impacted by COVID, and I kicked off my Light The Night fundraising early. Thanks to the generosity of so many, I have already raised over $2600. Please visit my page to learn more and donate online.

Yes, cancer did indeed pass, and COVID will, too. Meanwhile, we have the opportunity to learn what is important to us, how the human spirit can get us through challenging times, and how to savor life. Most importantly, it’s also ok and necessary to feel joy, despite it all, which is what surviving cancer has taught me.

Midterm Report: Chemo Trifecta

Ten weeks have passed since my Lymphoma adventure started. I continue to do very well, and had a great week on the journey I’ve been taking.

I finished round 3 of chemo last friday, and the side effects were, again, minimal. The most significant has been the fatigue, which an afternoon catnap and a tall half-caf from Starbucks pretty much takes care of. My biggest worry, like last time, was reacting to the Neulasta shot that I get to reduce the risk of infection while my white counts are low, a condition called neutropenia. People often experience bone pain, which I did pretty severely after the first round, but much less so after the second one. This time, it was about the same as round 2, maybe even slightly less so, and was again manageable with a little Tylenol.

I was able to connect in person with some friends for lunch and coffee—nice to see you Linda, Gloria, Joni, Ted, and Bill—some others for dinner and Scrabble—good game Jim and Kristy (btw, check out their sites if you need a massage or copy editing, respectively)—and also meet face-to-face for the first time with Zeth, my new Cancer Pal and colleague at NYU SCPS CADA. (Seriously, everything at NYU has to have at least three words in its name and an acronym.)

On the career front, I continue to stay busy, which is helpful to keep me from going stir crazy as treatment becomes more and more routine. I’m focusing on my online teaching, which lets me work from home and have a flexible schedule. That’s a huge plus if I have appointments or just want to take a break and rest a bit. My new course, Design For Coders, for new client LearnToProgram.tv, is open in early access for beta testing, and I self-published another, Interactive PDFs with Adobe InDesign: No-Code Digital (click here to get it for free through the end of the month). I was also excited to be honored with a 2013 American Graphic Design Award!

It’s a little hard to believe that I’m over the halfway mark, but I’m looking forward to continuing full speed ahead through the second half, and having a strong finish in November. Thanks to everyone for your continued love, support, and positive thoughts/prayers/vibes/energy. Lotsa love to you all!

Oh, and PS: I ordered the 32GB iPhone 5s in Space Gray. 🙂

Second Round Rundown

Joe in Cap and Black Tee

My friend, Carmen, snapped this pic of me, today.

I’m happy to report that I’m two for two! My second round of chemo went very well, with minimal side effects.

Dr. R. increased the dosage this cycle because I did so well after the first one, but I felt no differently for the most part, other than being slightly more tired. This gave me license to indulge in one of my favorite guilty pleasures: the afternoon nap.

I’m also happy to report that my reaction to the Neulasta shot was much less severe. This was expected, because I had less disease. This time, on a scale of one to ten, the pain in the bones of my lower back and legs only got up to a strong one at the most, and two Extra Strength Tylenols once a day took care of it. Last time, it topped off at a strong six, and I took the Tylenol every six hours. That time, the medication wore off at the height of the pain, after only about three and a half hours, leaving me to deal with it until I could take another dose. I also tried a preventative remedy that my Mom passed on—many of you know that she’s also an RN—which seems to have worked, and was recommended through an Oncologist in her medical community: one Claritin the evening before, of, and after the shot. I’m a good patient (if I do say so myself) so I first made sure to clear this with Moira, my fantastic RN/Hematology Nurse Practitioner, before taking anything that hadn’t been prescribed by their office.

The only real issue has been low white blood cell counts: 1500 total with 800 neutrophils (the NIH defines normal as 4,500 to 10,000). As a result, I was put on a five-day course of prophylactic antibiotics. The low counts mean that I feel the fatigue more, too, so I decided not to fight the masses of travelers this Labor Day weekend, and instead have been laying low at home in Brooklyn. These results were expected; in fact, if my counts were good like last time (11,000), Dr. R. would have increased the chemo again for round three.

One thing is certain: my appetite hasn’t been affected. I’m eating like a horse. I met friends for a great brunch at Alchemy, yesterday, and lunch at ‘Snice, today. Before lunch, I stopped at the farmers market on 5th Ave and 4th St, and made a nice haul of fresh produce. Wait, did I really spend $10 on arugula?! No matter, I’ve paid that for a cocktail, and this ten spot went towards part of two bags of local, pesticide-free fruits and veggies to feast on this week. On a related note, I’ve been cooking and eating at home a lot more, which has been very therapeutic and fun. Except for doing the dishes. I don’t ever find washing dishes fun. Especially since, like most NYC apartment dwellers, I don’t have a dishwasher.

The last eight weeks have flown by, but the dust is settling a bit and I’m getting back into a routine. This was my first full week of work since being diagnosed, and it was very productive. I published a new online course of my own at Udemy.com, Interactive PDFs with Adobe InDesign: No-Code Digital, and another, Design for Coders, which I did for my new client learntoprogram.tv, was opened for early access and will go live in about two weeks.

At one-third of the way done, I’m feeling great and hoping the pattern continues for the next four treatments. Thanks for keeping those prayers, thoughts, vibes and all forms of positive energy coming; clearly they’re working!

Lotsa love,

Joseph/Joe

PS: There’s still plenty of time to support my Light The Night Walk on September 25!